What You Need To Know
To Get It All Right The First Time+++ “I got it all wrong, but you don’t have to” +++
|Lupus Symptoms in Women - I thought it would just be a matter of taking medication and getting on with a normal life. How wrong I was – This Systemic lupus Erythematosus illness does not just affect the sufferer, it has a profound effect on family and friends as well.
I Got It All Wrong With My Children
I wish I had known how to see things from their perspective as well
|Lupus Symptoms in Women - One of the main things that struck me was that I hadn’t realised that my children were growing up and had become more aware of the fact that I was ill. They were worrying about all sorts of things that COULD, (and should), have been discussed and explained.
While writing this Lupus Family Survival Guide it became quite clear to me that having these
lupus symptoms was not just about me being ill……it’s also about dealing with it as a family. At this point I asked my eldest daughter to write and explain what it is like to live with a mum who has lupus symptoms in women.
I knew Alex wanted to go to university, but I was not aware that she wanted to escape from the situation at home.
What I had expected her to write about was that her mum is always tired and never has the energy to enjoy life with her because of this awful systemic lupus erythematosus malady.
During the final stages of putting the survival guide together, my second daughter Megan decided she would have a read. After reading it she insisted on adding her point of view.
Although I had realised that my systemic lupus illness was affecting her, I hadn’t expected such honesty, so much so that it made me cry. Anyone who knows Megan will tell you that it is written straight from the heart and explains much of the way she has acted over the last few years, especially at school.
My two younger children have yet to tell me how my lupus symptoms in women has affected them -
I will definitely be talking to them and reassuring them in the future.
I Got It All Wrong With My Family & Friends
They didn’t know my situation, so they didn’t know I needed help!
Lupus Symptoms in Women - Getting The Support of family & friends can be very difficult…
Telling people that you are not well or exhausted only puts up barriers. It is so easy for family and friends to expect unrealistic goals from you and for them to begin to think that you are either playing on the illness or just being downright lazy.
Lupus Symptoms in Women - The information in my Lupus Family Survival Guide can change your life. Just getting the people around you to read it will change their whole concept of what lupus symptoms in women is all about and what have to go through every day.
You will have a stress-free way of getting them on side…
The others reading the guide will lighten your load.
This on its own makes it Indispensible!
I Got It All Wrong With The Doctors
When seeing my Doctor – I wish I had known what to expect.
Had I known what to do, say and expect in the first place would have saved me from a lot of grief & suffering over the years.
Know Your Symptoms…
With lupus symptoms in women some of the first things you may notice other than the relentless exhaustion, hot, stiff & swollen fingers and feet, are the loss of appetite and feeling sick.
Secondary problems can occur, such as dry eyes & mouth and dry skin.
Thyroid problems can cause the body to slow down, causing constipation and lethargy, or speed up causing hyperactivity and diarrhoea…
Keeping a record of how you are feeling, and what
may have caused any ups & downs…Is Essential In Optimising Your Treatment.
Know The Questions…
|First you need to find out if you have systemic lupus symptoms in women. Has your Doctor done all the obvious tests for problems like Lethargy, Exhaustion, Loss Of Appetite, Feeling Sick, Hair Loss?
If all of these are inconclusive, then you need to ask for blood tests relating to Rheumatology.
When you’ve read my lupus symptoms in women survival guide you will know how to approach your own Doctor and also know what kind of specialist should be treating you…
…getting This Right Will Get You TO THE RIGHT PEOPLE More Quickly.
I Got It All Wrong Most Days
I ran out of energy at all the wrong times.
Know How To…
|Cope with exhaustion by learning how to pace yourself.
Learn how to arrange your days in order to cope.
You will get valuable information from the systemic lupus symptoms in women survival guide
that will help you every day, and so get you a better Quality-Of-Life