Recommended Lupus Books
I have created this reading list because these books that I have found have been very helpful in my understanding of Lupus and other related autoimmune conditions. There are too many old books that are out of date and can be quite frightening to read so I hope the information below will help you make a good decision on which books to buy.
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Lupus Everything You Need To Know By Robert G Lahita M.D and Robert H Phillips PH.D ISBN 0-89529-833-3 This was one of the first books I purchased, the book is set out with a question and answer format. My copy is well worn because I keep referring back too it as and when I need an answer to a question. It is well set out and easy to use, you don’t need to read the whole book; you can just read the section you are interested in. |
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Talking About Lupus By Triona Holden and Graham Hughes ISBN 0-7499-2468-3 I really enjoyed this book, it covers all the things you need to know about Lupus and the treatment of Lupus. Triona Holden, a former BBC war correspondent and newsreader, talks about how Lupus has affected her. I enjoyed the chapter about other famous people who are thought to have had Lupus and those who do, it made me feel that I am not alone with this disease. |
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London Lupus Centre A Patients Guide To Lupus By Graham Hughes ISBN 978-1-85873-431-6 Dr. Graham Hughes is world renowned for his work in the areas of Rheumatology and Connective Tissue Diseases. This book covers Systemic Lupus Erythematosus, Lupus Treatment and other related Autoimmune Conditions; it’s easy to read and a handy size to keep close at hand. |
| Lupus The Facts By David Isenberg and Susan Manzi ISBN 978-0-19-921387-0 This book covers all aspects of Lupus from very early symptoms to more complex symptoms, it covers tests used for diagnosis and how to manage your Lupus day by day. |
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Living Well With Pain & Illness By Jon Kabat-Zinn ISBN 978-0-7499-2860-5 When you are dealing with a chronic condition such as Lupus it is quite common to also be dealing with pain and depression; this is not easy to deal with and at times it can become overwhelming. This book covers motivating case histories and also has a step-by-step guide on mindfulness meditation. |
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Mindfulness Meditation For Pain Relief By Jon Kabat-Zinn ISBN 978-1-59179-740-1 This is another one of my well-used books. My counsellor was the first person to introduce me to Mindfulness Meditation, which we have practiced at all my counselling sessions for the past two years. Many times I have almost given up on it, you won’t get instant results, but I have found that over time I am practicing it more at home. I also like to practice it in difficult times such as: waiting in Doctors waiting rooms and school parents evenings when I get particularly stressed. This book covers depression and how to overcome it with the help of a mindfulness meditation CD. |
Lupus Diagnosis & Treatment
Lupus Uk
I gave a copy of this book to my Doctor as he knew very little about treating Lupus and its symptoms. The book is designed for doctors to use and so it has a little more technical language and goes into more depth about tests and what they mean. Go to www.lupusuk.org.uk to purchase it.
Coping And Living With Lupus
By the people who know
People suffering with Lupus have written this book, it contains their experiences and problems. The stories are all short and very moving; I found I could relate to these people. At the end of the book there is plenty of practical advice on how to cope with the many symptoms that Lupus can cause.
Go to www.lupusuk.org.uk to purchase it.
Lupus
Your First 100 Questions
Dr Graham Hughes
This book is very basic and is set out in a question and answer format. It is a very good book to start with when you are first diagnosed with Lupus and a good one to pass to friends and family so that they have a better understanding of what you are dealing with. It’s a small thin book so it is very easy to carry around.
Go to www.lupusuk.org.uk to purchase it.
Lupus
A Guide For Patients
Professor Graham Hughes
Another small handy book explaining all about: Lupus, Lupus Treatment, Lupus Tests, the History of Lupus and what triggers Lupus.
Go to www.lupusuk.org.uk to purchase it.
Recommended Antiphospholipid Syndrome (Hughes Syndrome)
The Brain And Other Animals
By Professor Graham R V Hughes MD
This book has fairly large print and is well spaced out, there are some basic graphics. It is about the experiences of other antiphospholipid syndrome sufferers’ journey of the disease and the outcome once diagnosed.
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Hughes Syndrome A Patient’s Guide By Graham Hughes ISBN 1-85233-457-6 I purchased this purely by accident on a one-click purchase on the Amazon site. I have read this book, which was very easy to read with plenty of pictures and diagrams to help make it more understandable. It is not a thick book and is easy to hold. |
Recommended Autoimmune Books
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The Autoimmune Connection By Rita Baron-Faust and Jill P Buyon M.D ISBN 0-658-02131-1 I have really enjoyed reading this book; I have found it invaluable in my search for answers to my ill health. This book is packed with the important information that you need to know about autoimmune conditions. The way it is written is for someone who wants a better understanding and more in depth answers, it explains how you may be prone to more than one autoimmune condition and which ones they are likely to be. |
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The Encyclopedia Of Autoimmune Diseases By Dana K Cassell and Noel Rose M.D PH.D ISBN 0-8160-4340-X I have not used this book as much as some of the others because I find the technical language a little too hard to understand but there is plenty to read about most Autoimmune conditions. |
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Thriving With Your Autoimmune Disorder A Woman’s Mind-Body Guide By Simone Ravicz PH.D M.B.A ISBN157224189-6 Many more women than men suffer with autoimmune conditions, this book covers these conditions and how they may affect women. It covers pregnancies, hormones, symptoms and treatments; the book is aimed at women in general. |
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Living Well With Autoimmune Diseases What Your Doctor Doesn’t Tell You That You Need To Know By Mary J Shon ISBN 978-0-06-093819-2 Living with one autoimmune condition is bad enough but if you do, the chances are quite high that you may well develop more. This book discusses the most common autoimmune conditions. It will help you work out which symptom belongs to which autoimmune condition and how to find the correct doctor to get the right treatment. It discusses the different treatments available and how you can help yourself. |
Hypothyroidism
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Understanding Thyroid Disorders By Dr Anthony Toft ISBN 1-903474-19-1 After many years struggling with thyroid problems this book was recommended to me, the book is well set out and easy to read. It is particularly good for UK patients, as the British Medical Association endorses it. If you are struggling with hypothyroidism and think you are being under treated but your doctor is not prepared to raise your thyroxin as you are in the normal band, this book gives positive advice on what your TSH levels should be to feel well, which you can show your doctor. |
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Your Thyroid And How To Keep It Healthy By Dr Barry Durrant-Peatfield ISBN 978-1-905140-10-7 This book is easy to read and understand. It explains all about the problems that the thyroid gland can cause and how to get proper treatment. It also explains how to interpret blood results. It covers other factors that are closely related to the thyroid gland such as the adrenal glands and the parathyroid glands and how you can help yourself. Dr Barry Durrant-Peatfield explains how important diet is and why it is difficult to loose weight when your thyroid is under active. |
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Living Well With Hypothyroidism What Your Doctor Doesn’t Tell You That You Need To Know By Mary J Shomon ISBN 978-0-06-074095-5 Hypothyroidism is hard to get diagnosed and treated to the optimum. This book explains the symptoms and how to get treated, it also covers all the things that the doctor hasn’t got time to tell you, or doesn’t know enough to tell you. It explains how to create a plan to help you feel well and at the end of the book there is a list of self help groups and how to contact them. |
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The Thyroid Diet Manage Your Metabolism For Lasting Weight Loss By Mary J Shomon ISBN 978-0-00-721183-8 Many people with an under active thyroid find it very easy to put on weight and very difficult to lose weight. This book covers why the body puts on weight and how to lose weight, it explains how your metabolism works and how to get your metabolism working properly. It contains information about which foods are good for you and which ones you should avoid as well as explaining how the thyroid works and how to get an under active thyroid to work as well as possible. |
Other Health Problems
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Leaky Gut Syndrome By Elizabeth Lipski M.S. C.C.N ISBN 978-0-87983-824-9 Many people who have an autoimmune system may also have leaky gut syndrome. This book explains what leaky gut syndrome is, how to test for it, as well as explaining ways to help your digestive system work at its optimum. It also has people’s anecdotes about how they have dealt with Leaky gut syndrome. |
Recommended Depression/Anxiety Books
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Feeling Good The New Mood Therapy By David D Burns M.D ISBN 978-0-380-81033-8 This book has been my bible for the last four years. It has everything that you need to know about dealing with depression and anxiety, it has the burns depression test which I have found incredibly valuable. Most drugs for depression are discussed in depth; there is also some very good advice on how to deal with depression and anxiety. It covers all about the brain and what is happening when you become depressed. |
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Sunbathing In The Rain A Cheerful Book About Depression By Gwyneth Lewis ISBN 0-00-768320-0 I was recommended this book in a depression forum that I belong to. It is an upbeat, wise and witty book about living and dealing with depression; it gives practical hints on diet and striking quotes. I have found I can pick this book up and start reading from any page. It puts a whole new outlook on depression. |
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The Mindful Way Through Depression Freeing Yourself From Chronic Unhappiness By Mark Williams, John Teasdale, Zindel Segal and Jon Kabat-Zin ISBN 978-1-59385-128-6 |
Self Help Books Workbooks
I have also included these three books above because I found them very helpful to use before I had counselling. They give plenty of advice about Depression and Anxiety with work pages for you to record how you are feeling and how to change what you are thinking and doing. These books got me through a camping holiday in Spain; it helped me not to panic at every silly little incident.
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Overcoming Depression And Low Mood A Five Areas Approach By Chris Williams ISBN 978-0-340-90586-9 |
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Mind Over Mood Change How You Feel By Changing The Way You Think By Dennis Greenberger PhD & Christine A Padesky PhD ISBN 978-0-89862-128-3 |
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Overcoming Anxiety A Five Areas Approach By Chris Williams ISBN 978-0-340-81005-7 |
Great material, thanks. I would just to point out that even the Mayo clinic agrees that vigorous exercise while pregnant can be helpful.