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I am a 27 yr old male (of european descent).
I was recently diagnosed with SLE 2 weeks ago. It all started with what I thought was the flu in mid Jan, prescribed Tamiflu (which didn’t help). Every 2 weeks after that I would have joint pain in my right knee, eventually came down with a fever again and my knee got really swollen and I couldn’t move it at all.
2 weeks after that my left knee began showing the same symptoms, and also occurred every 2 weeks, but the last occurence was after a month free of flare-ups.
Doc wants to start me on Plaquenil 3 times a week to see if the flare ups subside. Waiting for the okay from the eye doctor, but the fact that the meds can cause photosensitivity, liver/kidney problems, and in rare cases vision loss is a bit concerning for me.I really dont want to start a life long medication if it is not absolutely necessary especially with side effects like that.
I am unsure if I can go without the meds if my flareups stop occurring, or reduce in frequency, or if I am I putting myself at risk of having vital organs randomly affected.
I am going for a second opinion on the 20th to see if its conclusive. Just wanted to join these forums to get some info and hear other peoples stories as well. I know my story is fairly mild compared to others I have seen here, and my heart goes out to those people, it is extremely difficult compared to my case.
Any information is appreciated. TIA.